About 2% of people are diagnosed as intersex, but there is a lack of research on the experiences of intersex people, especially in the genetic counselling field. Podcast Subcommittee members Liann Jimmons and Jessica Dronen interview genetic counsellors Darius Haghighat, Kayla Horowitz, and Rebecca Freeman about their research and advocacy for the intersex community.

This an excellent podcast from the National Society of Genetic Counselors (NSGC), which is a leading voice, authority and advocate for the genetic counselling profession in America. The podcast is based on the research findings of Darius Haghighat, who, earlier on in the year, recruited a vast and varied selection of Intersex people from throughout the world.

Typical of an XXY diagnosis is the recommendation that we would benefit from speaking with a genetic counsellor, but we are never referred to one. Listen, learn and advocate for that right.