Will every person diagnosed with Developmental Language Disorder (DLD) struggle with their mental health? How do you support a loved one with mental health challenges? What do health professionals and educators need to know about working with people with DLD who also have mental health issues? https://www.youtube.com/watch?v=-orJLnCgGJw In this very practical episode of The Talking … Continue reading Developmental Language Disorder and Mental Health
For those in the community who find themselves piling on weight with or without of exogenous sex hormones, could this be a more probably cause? Scientists have discovered that depressed individuals show higher levels of inflammation as well as elevated fat concentrations in their bloodstreams. They also demonstrated that people with anxiety don’t have the … Continue reading Depression Causes Inflammation and Metabolic Imbalances
The American Food and Drug Administration (FDA) permitted marketing of the first game-based digital therapeutic device to improve attention function in children with attention deficit hyperactivity disorder (ADHD). The prescription-only game-based device, called EndeavorRx, is indicated for paediatric patients ages 8 to 12 years old with primarily inattentive or combined-type ADHD who have demonstrated an … Continue reading Children with ADHD can now be prescribed a video game
A collaborative research project between Australian Genomics,Murdoch Children's Research Institute (MCRI)& Genetic Support Network of Victoria (GSNV) Do you have a Genetic, Undiagnosed or Rare Disease?Do you care for someone with a Genetic, Undiagnosed or Rare Disease?Are you part of a Support Group for people with a Genetic, Undiagnosed or Rare Disease and their carers? … Continue reading COVID19 Journals: The lived experience of the Genetic, Undiagnosed and Rare Disease Community
https://youtu.be/-orJLnCgGJw In 'Words for Wellbeing Animation' Professor Courtenay Norbury talks about the connections between Developmental Language Disorder and social, emotional and mental health difficulties. And importantly what parents and professionals can do.
Who doesn't need someone to talk to during these stressful times and who better could that someone be but someone who's travelled your road either before you, along side you, or following on behind. If you live in Australia and are a member of either Intersex Human Rights Australia or Intersex Peer Support Australia and … Continue reading Have you got the Covid Blues?
https://twitter.com/i/status/1226747625577340929 Sadly the XXY community is awash with people like Callie where parents, siblings, loved ones and work colleagues complain about not "getting us" most within the community are medicated with anti depressive and /or amphetamines, resulting in our creativity being quenched. Those who are impacted struggle to fit in, to blend but, as her … Continue reading A World Without Meaning.
This review suggests a lack of or a late diagnosis remains a critical problem in relation to KS. While prenatal screening techniques may improve future diagnosis, current low levels of diagnosis remain problematic, particularly for the possibility of improving physical and mental health outcomes.
If you are a Doctor And consider yourself an expert in all things XXY, then you will never learn anything about us. Adult XXY's often have adversarial relationships with physicians. If you have a patient like that, don't take it personally, it's probably because the medical community has treated us so badly for the last … Continue reading What We Would Like Doctors To Know About XXY
An excerpt from a project by Barbi Gracner, reposted here with the kind permission of the author, someone whom we consider will one day shine a bright light on the rich diversity that is an XXY life. Since childhood, we all learn to wear different masks. They grow with our skin. And it's hard for … Continue reading Acceptance
Ring all the bells, that still can ring, this could well be a story typical of an XXY experience, albeit one without an additional diagnosis. Of note is how the article is extremely well researched with an abundance of additional resources we are sure you will find useful DCD is a lifelong disorder that cannot … Continue reading Dyspraxia is more than just “clumsy child syndrome” – it can cause emotional distress and anxiety throughout life
For a myriad of reasons there's a long history of loneliness amongst an XXY and variant population, reasons given seem to centre on an array of psychological issues sometimes attributed to Sex Chromosome Variants especially those with trisomies. Before we even get off the mark we are told we don't make for good partners, we are … Continue reading How Loneliness Begets Loneliness
Individuals with KS in our study seem to be the most vulnerable group. Not only were their autistic and attention difficulties high compared to the other variations but also their levels of depression and anxiety. Their self-reported anxiety, depression, ADHD and autism symptom levels were also higher when compared to the French reference population or … Continue reading Mental Health of a Large Group of Adults With Variations of Sex Development in Six European Countries.
Some fascinating and one would have to believe, truthful answers to what might otherwise be perceived as uncomfortable questions surrounding the Psychosexual experiences of XXY's. Too often missing from conversations around XXY virilisation and in more recent times an urgency to get with the program in infancy is the impact of potent sex defining hormones … Continue reading The Psychosexual Effects of Klinefelter’s Syndrome
Yet another excellent research article from the Danes who above all others really understand our biological makeup.KS patients had a significantly higher level of testosterone than controls, reflecting the fact that the majority of these KS participants were receiving high doses of exogenous testosterone. Similarly, testosterone levels among KS patients receiving testosterone therapy were significantly … Continue reading Anxiety and Depression in Klinefelter Syndrome: The Impact of Personality and Social Engagement