Mapping the Lived Experiences of Intersex/Variations of Sex Characteristics in Ireland

Kudos to Tanya, Maria, Mel and Anthony at DCU for finalising and publishing this invaluable report in such unprecedented times. It is hoped the finding will lay the groundwork to improve the lived experiences of those not yet diagnosed and all others who have gone unnoticed or have not been able to find resources and … Continue reading Mapping the Lived Experiences of Intersex/Variations of Sex Characteristics in Ireland

A New Approach to Seizure Treatment

There are many types of epilepsy, a brain disorder that causes recurrent seizures or periods of altered behaviours or sensations. Around one per cent of the world's population is thought to be impacted, or as many as 70 million people. In epilepsy, the electrical signals transmitted through neurons in the brain are disrupted. There are some … Continue reading A New Approach to Seizure Treatment

Mental Health Research Study

A chance for those of you with a Variation of Sex Development to participate in research. The author is focussing on those with Turner's and Klinefelter's Syndrome and would appreciate your input. From the AuthorI'm a student currently undertaking a research project entitled "To What Extent do Sex Chromosome Variations Cause Mental Health Issues?". I'm … Continue reading Mental Health Research Study

One in four medical researchers fail to declare conflict of interest

For anyone who has ever wondered why 47 XXY/Klinefelter research is biased in favour of masculinity, testosterone and fertility treatments, then look no further than this revelation published in The Journal of General Internal Medicine. One in four Australian medical researchers fails to declare important conflicts of interest in medical trials, such as payments from … Continue reading One in four medical researchers fail to declare conflict of interest

Talking About ADHD Language Guide

AADPA is excited to release the newly developed ‘Talking about ADHD’ guide. The guide was developed in conjunction with Neurodevelopment Australia and has been endorsed by the ADHD Foundation, ADHD Australia, and Parents for ADHD Australia.The aim of the guide is to encourage people to think about and stop using words/rhetoric (including words that elicit … Continue reading Talking About ADHD Language Guide

A qualitative exploration of gender identity among individuals with Klinefelter’s Syndrome/ 47 XXY.

The University of Derby (United Kingdom) is conducting research to explore the experience of gender identity among KS/XXY individuals and to understand if any of these experiences have affected an individual’s well-being. To understand the psychological support offered to individuals that may have experienced gender identity discomfort or uncertainty at any point in their lifetime

Gender Identity and 47 XXY Survey.

The KS/XXY clinic at St. Thomas’ Hospital in the United Kingdom is seeking your help with conducting some valuable research, part of which includes a questionnaire that seeks to understand the varying gender representations seen amongst 47 XXY's. The findings will be used to determine how the clinic might better support those whose identities differ … Continue reading Gender Identity and 47 XXY Survey.

Please Help Merlin Tell His Story and Change Lives

In 2003, when the paediatrician broke the news to the expecting parents that their future child had been diagnosed 'in utero' with a condition called 'Klinefelter Syndrome’ or “XXY’ - and gave them the option to terminate the pregnancy - they were stunned.  Why had they never heard of it? How bad was it? Was this … Continue reading Please Help Merlin Tell His Story and Change Lives

The nearly forgotten origin myth of Hawaii’s third-gender healers, as told by one

Could the Māhū have been XXY or some other form of Intersex? In Hawaiian culture, moʻolelo means story, tale or myth, but it also refers to history. Traditionally passed down through oral storytelling, moʻolelo serve as a connection to the past, carrying wisdom and entertainment across generations. Over the centuries, however, many moʻolelo have been censored or … Continue reading The nearly forgotten origin myth of Hawaii’s third-gender healers, as told by one

Paul Byrne Moroney on what it means to be Intersex/XXY

From the age of eight, intersex male Paul Byrne-Moroney realised his body was different from that of his brothers and other boys his age.For years, a cruel nightmare cursed his sleep — an intruder would enter his bedroom, pull back the blankets, look at his body and laugh. Now 54, Paul tells Independent Australia of the … Continue reading Paul Byrne Moroney on what it means to be Intersex/XXY

Stories of Intersex and Faith

https://youtu.be/3thDZvc6vEA The long-awaited documentary has now been released and is presently taking bookings at Universities throughout the world. Please consider sharing it among your networks.Caught in the crossfire at the intersection of medicine, politics, and religion, perfectly healthy intersex children are being surgically altered to appear more like typical girls and boys. Surgeries and hormone … Continue reading Stories of Intersex and Faith

Brain-training app that improves concentration

Photo credit: Wes Hicks If you've ever convinced yourself that your lack of attention might be better helped with medication, think again: a simple brain-training app from Cambridge University just might be the ticket. The university's Behavioural and Clinical Neuroscience Institute has developed and tested "Decoder", an app which activates a frontal-parietal network in the … Continue reading Brain-training app that improves concentration

Non-invasive Breast Cancer Test On The Horizon

Photo by The National Cancer Institute

The non-invasive Breast Screening device has arrived, and will no doubt prove a saviour to an XXY community who do not fit the criteria for annual breast check-ups offered to females yet are equally exposed to a Breast Cancer risk.Getting a breast cancer diagnosis often means having to endure multiple tests, including some painful and … Continue reading Non-invasive Breast Cancer Test On The Horizon