Kudos to Tanya, Maria, Mel and Anthony at DCU for finalising and publishing this invaluable report in such unprecedented times. It is hoped the finding will lay the groundwork to improve the lived experiences of those not yet diagnosed and all others who have gone unnoticed or have not been able to find resources and … Continue reading Mapping the Lived Experiences of Intersex/Variations of Sex Characteristics in Ireland
The University of Derby (United Kingdom) is conducting research to explore the experience of gender identity among KS/XXY individuals and to understand if any of these experiences have affected an individual’s well-being. To understand the psychological support offered to individuals that may have experienced gender identity discomfort or uncertainty at any point in their lifetime
The KS/XXY clinic at St. Thomas’ Hospital in the United Kingdom is seeking your help with conducting some valuable research, part of which includes a questionnaire that seeks to understand the varying gender representations seen amongst 47 XXY's. The findings will be used to determine how the clinic might better support those whose identities differ … Continue reading Gender Identity and 47 XXY Survey.
Researchers at the University of NSW are seeking volunteer research participants to identify home features impacting children and adolescents with ADHD. By participating in this research you can help us better understand how to make homes more suitable for people living with ADHD. Who Can ParticipateBe over the age of eighteen, andBe a parent guardian … Continue reading Can Your Home Affect Your Child’s ADHD?
Just published and made available through Amazon, "Tomorrow" written by Nathan Bowker an XXY individual who identifies their gender as Non Binary, Tomorrow documents the authors lived experiences from difficult school years to an eventual diagnoses of Klinefelter's Syndrome in their early twenties. Unlike a lot of squeaky clean accounts of living with Klinefelter's Syndrome, … Continue reading Tomorrow
For the first time in Ireland, an attempt is being made to understand what life is like for people with atypical sex characteristics. At the moment, there is not enough data about people’s lives to meaningfully engage in policy reform to ensure their rights are upheld in all aspects of life and society. As such, … Continue reading Research questionnaire for people with Atypical Sex Characteristics in an Irish context.
Of the key people in their lives, doctors, mothers and friends were most likely to know about their variations, principals and priests/spiritual advisors were least likely to know. Participants were most likely to have experienced supportive responses from a friend, partner, sister or mother; and least likely to have had a supportive response from people at school.
Given the recent remarkable advancements in genetics, it's easy to assume that 21st century scientists have at their disposal a clear, quick way to run a genomic sequence scan and find out which genes among thousands can be expressed and which cannot. Gene expression is the process by which information encoded within genes leads to … Continue reading Biologists pioneer first method to decode gene expression
Although long established how age can play a part in the creation of sex variants, researchers have always refrained from blaming either parent outright insisting instead on a 50/50 approach (it keeps marriages together). But now it seems there's a third possibility, that of the fetus itself . What if sex chromosome variants weren't the … Continue reading New Mutations Appear in the Sperm and Eggs of Parents
Scientists have developed a molecular "clock" that could reshape how paediatricians measure and monitor childhood growth and potentially allow for an earlier diagnosis of life-altering development disorders. The research, published this week in PNAS, (Full Study) describes how the addition of chemical tags to DNA over time can potentially be used to screen for developmental differences … Continue reading New DNA ‘clock’ could help measure development in young children