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16 entries.
Leonie Leonie from Yass wrote on 27/05/2022 at 18:05
Hello. My name Leonie. I am a very proud Mum of 3 boys youngest a 11 year old. Who has XXY syndrome. My Son got diagnosed at 18mths. My very clever paediatrician Dr Rosier made the discovery. Had have emergency surgery as testicles was in the stomach. My Son did not say a word till 3 years old. And the single word was โ€œmumโ€. The moving forward past few years is support and love in bounds. I support my Son with whatever is chosen. My Son loves being in girls company over boys. My Son is a wonderful kind soul. Klinefelter will never take that away from me or my Son.
Thank you
Leonie
Ste Ste from Brussels wrote on 20/04/2022 at 05:12
I found this project and group right after having be kicked-out of another group, sadly led by cis heternormative men. The homepage here made me feel like home. A home shared where everyone would respect everyone's thruth. Where I could express myself openly and not being judged for who I am. And that's very important, beyond the chromosomes that we have. Thank you XXY Project!
Admin Reply by: onevoice47xxy
Thank you Ste, we appreciate your comment and vote of confidence in what we are doing, the project celebrates the diversity of XXY life regardless of where that should lead us.
Dean from the XXY Society Dean from the XXY Society from England wrote on 09/03/2022 at 12:39
For over a decade now I have volunteered my time with XXYs to increase knowledge. Candice was present at the beginning when I started, had already been going for years, and will be likely at it forever. I think Candiceโ€™s XXY Project has a wealth of interviews, promotion of studies, and advocacy for the protection of self determination of XXY children. Itโ€™s a great resource and full of information, and not shared widely enough, especially amongst parents.
Admin Reply by: onevoice47xxy
Thank you, Dean, it's a work in progress that's for sure, where we each give what we can and hope it will resonate with someone and make their lives just that little bit easier.
Robert Bridges Robert Bridges from Bayfield wrote on 08/03/2022 at 06:38
I believe it was the XXY project that found me and I am ever so grateful that you did.
It was several years ago, shortly after I had posted an entry in a blog I used to write and it as a post called: "I am an XXY/Intersex kind of guy." I wrote it following a kind of public coming out as an xxy/intersex person participating in the local Pride Parade. This was several years ago and wow have things changed! Back then I had just really begun to explore the positives of being xxy, just beginning to make some peace with myself after all the years of shame and hiding that I'd been encouraged to maintain by well meaning physicians who knew actually nothing about the existential realities of being xxy but seemed to know quite a bit about the assumed medical and social discrimination I might find if I was to be open about my "condition." Instead, by participating in conversations with xxy why folks that I came into contact with via the XXY Project, I began to look at what I had always considered as "weirdness" as a commonly held experience among some, not all, but some of us xxy people. This was immensely freeing and healing and opened up other ways of looking at what in the past I had felt were abnormalities and problems in an entirely new light. It was, to say the least mind blowing.

For the first time I began to understand my own unique sexual desires and to view the kinds of sexual thoughts and fantasies in a totally new light - a light that shone into the darkness and brought forth clarity, understanding and acceptance of how the energies which our society labels as "feminine" and those labeled as "masculine," are in fact combined and integrated within me in ways that prior to finding the XXY project led me to believe that I was either seriously perverted or the victim of some grotesque sexual abuse....the truth being neither of the above.

The truth being a creative blending of the feminine and the masculine within me that is simply different. I have also found great support among the folks of the XXY Project for my decision to stop taking testosterone and to allow my body and its systems to regulate themselves naturally -- and naturally I have embraced the identity of intersex and found the courage and support to speak out openly about being intersex - about having 47 instead of the binary 46 chromosomes, the fact of biologically being literally non-binary. I could not have learned or done or come to the same degree of self acceptance had I not been found by the folks at XXY Project.
Admin Reply by: onevoice47xxy
Thank you, Robert, we are all in this together and like you say, it is only through sharing our individual journeys and experience of being XXY that others come to realise they are not alone. I'm really glad things are better for you now.
Thierry Thierry from Brussels (Belgium) wrote on 11/02/2022 at 08:39
I have been browsing your page and your facebook group for years and I have found many answers to the questions that were swirling around in my head. Sometimes people think I've disappeared when not at all and I reappear to come and read a little bit of digestible things. I am XXY, I am 49 years old and these last 2 years have been difficult not only because of the Covid and the coercive crisis but also because my brain seems to degenerate a little. I have more and more difficulty understanding and remembering things that I used to remember and understand very well. I have a nursing degree and until 2018 I was performing well. I no longer take testosterone at all and God forbid. These injections during my adolescence and my young adulthood had bad repercussions on my mental but also physical health when they had been sold to me as the only treatment for Klinefelter syndrome on the pretext of benefits for the body and the spirit. Everyone is and probably reacts differently but everyone receives the same prescription. I must have been the one who was too different and I'm paying for it today. I would still like to live just a little bit properly. I am happy to read you and sometimes to exchange with some of you. Above all, don't stop! I couldn't mourn that. You are essential in many ways. Thierry
Admin Reply by: morgan5050
Thank you for leaving a comment Thierry, it's always lovely to hear from you and we value your input and awareness of all things XXY.
Claire Claire from New Jersey USA wrote on 08/02/2022 at 11:40
I have been grateful for this community for a long time as the parent of a currently 14-year-old 47xxy. The inclusive nature and worldly acceptance of all manner of chromosome variation humans, without criticism and condemnation, is what keeps me coming back. ❤️
Admin Reply by: onevoice47xxy
It's been a delight to have travelled part of this journey with you and to witness the coming of age and awareness of your beautiful child
Juleigh Juleigh from Savannah wrote on 03/02/2022 at 20:40
This site is all-encompassing and I am thrilled that it was able to be saved!! So many great stories of individual XXYs who are on very separate journeys in the XXY Spectrum! Itโ€™s great that this is a safe place with great articles and information for all. Itโ€™s great that all XXYs are supported here because itโ€™s an intersex spectrum and not everyone will have the same organs or issues as the next!! Bravo I share this site with everyone seeking XXY restitution 💋
Admin Reply by: onevoice47xxy
Thank you Juleigh we appreciate you sharing the project with others and equally so, knowing it has resonated with you.
Erin Payne Erin Payne from Edmonton AB Canada wrote on 03/02/2022 at 15:18
I was dx'ed in 1976, 1986, told I couldn't make a baby but the doctors didn't know why. In 2002 I got a karyotype - xxy/xxxy/xy mosaic. And on the computer I found answers to my questions from 26 years past and continuing. The best answer was if you want to know something about xxy, ask someone who has it. Even after eighty years, my general practitioner said they saw the word in their books and one paragraph describing it.

I never tire of talking about xxy and how it has affected me because the world needs to know and the scientists appear not to be interested. This condition affects each of the people who have it in different ways. Some are male, some are female, some are both and still, others are neither male nor female.

This project allows us all to talk about all of these things and more. Thank you to the founders and participants.

Erin
Admin Reply by: onevoice47xxy
Thank you, Erin for your contribution and for your continued awareness of things that matter most in our lives
Chris May Chris May from Swaffham wrote on 02/02/2022 at 19:44
Hi,
Was self-diagnosed at the age of 50ish, memory issues! Feel slightly let down by the medical professionals, as the endocrinologist does not seem to listen! Twice yearly checkups last for about 3minutes!
Admin Reply by: onevoice47xxy
Good Endocrinologists are rare, and even rarer are those who understand XXY, which is more than I can say for GP's who, for the most part, are clueless. In that absence, all that remains is self-advocacy where (as in your situation) we are the ones informing the doctors of our own health needs. This is why The XXY Project is so important to our community.
Chris Fields Chris Fields from SW Florida wrote on 02/02/2022 at 10:49
Diagnosed XXY 30yrs ago & participated in study of multi chromosomal people 2018 at NIH.
Thanks for creating this venue
Admin Reply by: onevoice47xxy
Hi Chris

Did the study answer questions or, result in an information overload?
Edward Fuchs Edward Fuchs from Rosh Pina wrote on 02/02/2022 at 09:42
hi.
I don't talk about it much anymore. So tired of explaining to confused faces.
And when meeting someone new I don't talk about it too.
If someone is interested in a relationship with me I don't say anything until there is an understanding for a relationship but unfortunately it just delays the rejection
I remain unattached to anyone.
Admin Reply by: onevoice47xxy
Perhaps the secret to finding a partner is to source one that loves you for who you are, rather than what you perceive yourself to be? Your music is a great connection to that soul.
Dennia Dennia from Springfield, Missouri USA wrote on 02/12/2021 at 17:45
Iโ€™m 70. XXY Mosiac Male, but I donโ€™t like being a man; itโ€™s taken years to come to this realization. Iโ€™m rather a rare case as I was able to father 3 perfectly healthy daughters with no fertility help necessary. Iโ€™ve always struggled since just before puberty with feeling femaleโ€”wanting to be female. XXY to me seems to be the explanation and the justification of why Iโ€™m this way. Iโ€™ve since learned it may not be so. Well, I claim it anyway.
Itโ€™s a rather long story of how I found out I was XXY and I believe that God led me step by step toward learning of it. One drastic piece of evidence was my defective heart valve which was fixed during heart surgery for an aortic aneurysm. My body has a few non-typical male features too. I can easily wear bracelets that are sized small for women, for example.
Itโ€™s too late in life for me to consider living as a woman. My wife, who Iโ€™ve been happily married to for 43 years now is not at all in favor of such a drastic move, though she has accepted me and my intersex nature as much as she can. It does help to be able to point to something like Klinefelterโ€™s as an explanation for being who I am. It helps my 3 girls understand too. We have a very loving family.

No, I canโ€™t transition but I did have something that I thought would let me get half way there. I found a lump in my left testicle and I was hoping it would be cause for my testes to be removed. I could then go on estrogen as my hormone to keep my bones healthy. Well, after tests, it turns out that the lump is a cyst and my urologist assures me itโ€™s nothing to be concerned about. I was crushed. I still have hopes that some urologist or some study will show that itโ€™s safer to have these cysts removed than not. If anyone reading this (who can see my email) knows of this being true, please get in touch with me. Anyone else maybe can respond here.

Oh, I used to fight my feminine desires. I thought they were sinful. I had so much guilt. How I suffered all those years for basically no reason. If youโ€™re wondering, I did tell my wife before we were engaged about my tendencies. We both thought they would all go away after marriage. How naive. No, they get stronger the older you get Iโ€™m finding out.

Iโ€™m more accepting of myself and my nature now. Whether it was XXY or something in my brain before birth, Iโ€™m really a trans woman by todayโ€™s nomenclature, because one doesnโ€™t have to change anything on the outside; she just knows on the inside who she isโ€”except being intersex means Iโ€™m not exactly โ€œtrans;โ€ Iโ€™m kind of already half thereโ€ฆ in between.

I hope thereโ€™s a way that some of us can get in touch with each other. I donโ€™t have any familiarity with this project or blog, but maybe thereโ€™s a place to post person to person.

💕 Dennia
Admin Reply by: onevoice47xxy
I'm sorry you've had to endure gender dysphoric thoughts for so many years and sincerely hope you find some means to acknowledge them. Here in Australia, The Sea Horse Society fills that void for so many in a similar situation.
Graeme Tucker Graeme Tucker from Palmerton North, New Zealand wrote on 18/10/2021 at 06:32
I was invited to sign your Guestbook and I accepted. I was diagnosed officially 23/11/1976, but I was suspected with all the typical traits 2 months or so before then. This was the start of my 18 years being kept in the dark by the very people supposed to be helping me, the medical profession!

It was viewed by them that for me to know everything there was to know in 1976 I would imagine my condition was much worse than it was. As it turned out, it WAS much worse than they lead me to believe! I had no idea.
Admin Reply by: morgan5050
Thank you, Graeme.
Paul Dutton Paul Dutton from Liverpool wrote on 04/10/2021 at 17:43
Diagnosed 1996. Passionate about xxy and I/VSC rights.
Admin Reply by: morgan5050
Thank you, Mr Dutton, The XXY Project has long valued your commitment to XXY and Intersex issues in the UK and how that commitment extends to maintaining XXYtalk which is, without doubt, the greatest resource our community has known.
Ila Ila from Athens wrote on 04/10/2021 at 02:55
Thank you for all of the hard work that's gone into this site and making these resources available to all of us in the community. There are too many other places where being XXY and/or having KS is a pejorative, disadvantage, or other negative rather than just another way to be human. We are both uniquely gifted and uniquely challenged and I am grateful to have a community in which I feel at home.
Admin Reply by: morgan5050
Thank you Ila for your lovely comment, and your long term association involving XXY awareness
Silky T Silky T from Sydney wrote on 03/10/2021 at 20:09
I really appreciate the work you guys have put into building this resource which is without any doubt a far superior website in terms of supporting adult XXY's who rarely get a mention in parent focussed groups and web resources. I especially like how it acknowledges our diversity and leaves no one out.
Admin Reply by: morgan5050
You are most welcome and thank you for reading here.