In 2003, when the paediatrician broke the news to the expecting parents that their future child had been diagnosed 'in utero' with a condition called 'Klinefelter Syndrome’ or “XXY’ - and gave them the option to terminate the pregnancy - they were stunned. Why had they never heard of it? How bad was it? Was this … Continue reading Please Help Merlin Tell His Story and Change Lives
At the XXY Project we are anti anything that depicts Chromosome Variations of any description as being abnormal because what they're describing is not the natural variation these differences are but rather something that's broken and something that needs to be fixed. Medical Science, Clinicians and the like are steadfastly stuck on the notion that … Continue reading Chromosome Variant Factsheet
THE WILLIAM ALLAN MEMORIAL AWARDPresented to Patricia A. Jacobs, D.Sc., at the annual meetingof the American Society of Human GeneticsDallas, October 28-31, 1981.Introduction byJOHN L. HAMERTON The presentation of the William Allan Memorial Award is a special occasion each year for this Society. The award has been presented to distinguished human geneticists both from North … Continue reading A Tribute to Patricia Jacobs.
The Australian Human Rights Commission project on protecting rights in the context of medical interventions is accepting submissions until the end of this month. If you want to comment, talk about your own experiences or those of family members, then please do so by 30 September! This is the most important inquiry in Australia since … Continue reading Project explores rights of Australians born with variations in sex characteristics