A qualitative exploration of gender identity among individuals with Klinefelter’s Syndrome/ 47 XXY.

In conversation with an Executive Director of AXYS some years ago at a time when they were trying to embrace Intersex and what bearing it would have on the general population, I found it difficult to shift his focus away from gender identity which in effect was a ‘get out of jail free card’ because it would give them the right to say not all XXY’s were intersex when in effect they actually are. You see Intersex or being Intersex relates to Biology our innate selves what makes us who we are, whereas Gender relates to identity and who we perceive ourselves to be, the two are not related. At that time, AXYS represented several different sex chromosome variations, such as XXX, XXY, XYY, XX/XY and of those I was asked why XXY’s were the ones more likely to experience gender dysphoria, I told him the answer was staring him in the face, that the presence of two X chromosomes was always going to be counterproductive when the individuals were administered Testosterone as their primary sex defining hormone.

Sadly AXYS never did ‘officially’ embrace the concept of Intersex and nor for that matter the concept of heightened gender dysphoria amongst XXY’s who are administered androgen therapies. In that absence, because AXYS is a formidable voice that works closely with doctors who make the rules regarding our medical treatment, all those who for whatever reason were unable to tolerate testosterone are left with deep-seated psychological scarring of being forced to conform to something they are not. To this day there is no dedicated medical care for XXY’s who are unable to adhere to Testosterone ‘the standard treatment of care, which is all the more reason why research of this nature is so crucial to shining a bright light on segments of the ‘community’ who are never included in ‘support’ groups and rarely if ever spoken of.

The research has the full backing of The XXY Project. We would appreciate it if those of you who have followed our advocacy over the years and have an affiliation with XXY would complete the survey and share it amongst your networks. By taking part you will be helping to further understand gender identity among individuals with KS/XXY and contributing towards shaping the psychological support required for those who may experience discomfort or uncertainty as a result of their gender identity experiences

The University of Derby (United Kingdom) is conducting this research to explore the experience of gender identity among KS/XXY individuals and to understand if any of these experiences have affected an individual’s well-being. To understand the psychological support offered to individuals that may have experienced gender identity discomfort or uncertainty at any point in their lifetime, and/or prior to and during hormone replacement therapy (HRT) (if applicable). To inform potential recommendations about providing KS/XXY specialist psychologists to support individuals with KS/XXY.

The study has been reviewed by two members of staff on behalf of the University of Derby College of Health, Psychology and Social Care Research Ethics Committee and is in accordance with the ethical guidelines of the British Psychological Society; a professional body of psychologists in the UK who overview research to ensure that it protects the safety, rights, wellbeing and dignity of anyone who takes part.

Link to Study

Gender Identity and 47 XXY Survey.

The KS/XXY clinic at St. Thomas’ Hospital in the United Kingdom is seeking your help with conducting some valuable research, part of which includes a questionnaire that seeks to understand the varying gender representations seen amongst 47 XXY’s. The findings will be used to determine how the clinic might better support those whose identities differ from that of males. Contributions are sought from XXY’s above twelve years of age and (if necessary) parents and guardians are welcome to assist.

The questionnaire consists of twenty-three questions and should take around ten minutes to complete. Your responses will be confidential and no information that could personally identify you will be collected.

Once completed, the results and further directives will be shared with the Klinefelter Syndrome Association.

We appreciate your help and ask that you share this with your networks

Link to questionnaire