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The XXY Project

The XXY Project

Raising awareness of 47XXY and embracing its diversity

  • Join Us
    The XXY Project depends on volunteers with an affiliation of XXY to maintain our website and Media platforms. We need people experienced in peer..
  • Your Story
    While our Karyotypes are often similar, our actual journey’s to a place of acceptance can be very different. If you are an XXY individual or have a child
  • Donate Today
    Please consider making a small donation to assist with our running costs. The XXY Project is run and paid for by volunteers
  • Home
  • Blog
  • What is 47, XXY
  • In Perspective
    • What We Wish Doctors Knew About Us
    • Mental Health
    • Are you a Parent?
    • The XXY Individual
  • Our Journey’s
    • The Climb.
    • Caught Between
    • Lost and Found
    • Everything Is Clearer Now
    • We Are One
    • Venture a Highway
    • Silent Tears
    • Watching, Waiting
    • Living with My Son – A True Adventure
    • You Are Not Alone
    • Just an XXY/Intersex Kind of Guy
    • Walk With Me
    • A Tribute
    • The Hole In Me to the Whole Me
    • In Memory
    • Being Intersex – A History – A State of Being
    • I’m a Man and a Woman
    • In A State of Perpetual Motion
  • Library
    • Books
      • Living With 47XXY, 47XXX & 47XYY (English with Spanish Translation)
      • The KS Story (You are not alone)
      • Gender Dysphoria Services: A Guide For General Practitioners and Other Healthcare Staff
      • Finding Your Way With ADHD: Struggles, Supports, and Solutions
      • The X in Sex; And How It Controls Our Lives
      • The Masculine Mystique of T
      • The Centenary of Genetics: Bridges to the Future
      • Gregory and his Extra X
      • Guidance on the Assessment and Diagnosis of Intellectual Disabilities in Adulthood
    • Health
      • Hormones
        • Oxandrolone Treatment Results in an Increased Risk of Gonadarche in Prepubertal Boys With Klinefelter Syndrome
        • The Role of Hypogonadism in Klinefelter Syndrome
        • Clinical Practice Guideline: Testosterone Therapy in Men with Hypogonadism
      • Mental Health
        • Autism and social anxiety in children with sex chromosome trisomies: an observational study.
        • Mental Health of a Large Group of Adults With Variations of Sex Development in Six European Countries.
        • The Lived Experience of 47XXY (Klinefelter Syndrome): A Narrative Review of the Literature
      • Cognitive
        • A Review of Neurocognitive Functioning of Children with Sex Chromosome Trisomies
        • Guidance on the Assessment and Diagnosis of Intellectual Disabilities in Adulthood
        • KS Increased Brain Responses Not To Visual Stimuli
        • Understanding Sex Differences to Inform Studies of Diseases of The Nervous System
        • Beyond the Literal Meaning of Words in Children Who Are XXY
        • The behavioural profile of children aged 1–5 years with sex chromosome trisomy (47,XXX , 47,XXY , 47,XYY )
      • Physiology
        • Mortality in Patients with Klinefelter Syndrome in Britain: A Cohort Study
        • Genes Underlying Delayed Puberty
        • Is the prevalence of Klinefelter syndrome increasing?
        • Recent Advances in Managing and Understanding Klinefelter Syndrome
        • Chromosomal Variants Amongst XXY (Klinefelter Syndrome)
        • Clinical Challenges Among 47 XXY Children, Adolescents, and Adults
        • What Is the Biologic Basis of Variations in Sexual Phenotype
        • What microRNAs could tell us about the Human X Chromosome
        • 47XXY and Autoimmune Diseases
      • Fertility
        • So, You Want To Have A Baby?
    • Educational
      • Hormone Replacement Therapy
      • Special Brothers and Sisters
      • Is the prevalence of Klinefelter syndrome increasing?
      • Chromosomal Variants Amongst XXY (Klinefelter Syndrome)
      • Mary F. Lyon (1925–2014)
      • Recent Advances in Managing and Understanding Klinefelter Syndrome
      • Dr Michael Noble (47XXY)
      • Mortality in Patients with Klinefelter Syndrome in Britain: A Cohort Study
      • A History of Medical Genetics in Pediatrics
      • Genes Underlying Delayed Puberty
      • Anxiety and Depression in Klinefelter Syndrome: The Impact of Personality and Social Engagement
    • Media
      • So you think you know sex?
      • How To Draw a Family Tree
      • Creative Explanation of Klinefelter’s Syndrome
      • XXY Related Meme’s
      • What is Intersex
      • X Chromosome Inactivation
      • A Conversation with David Strachan.
    • The Darlington Statement
  • Contact

Tag: Intersex

Chromosome Variant Factsheet

by onevoice47xxy09/08/201908/11/2019

At the XXY Project we are anti anything that depicts Chromosome Variations of any description as being abnormal because what they're describing is not the natural variation these differences are but rather something that's broken and something that needs to…

Read More Chromosome Variant Factsheet

Children, Chromosomes, Research, Sex Awareness, Chromosomes, Intersex, Knowledge, Sex

Advocacy + Peer Support

Reach Out is Australia’s leading online mental health organisation for young people and their parents. Our practical support, tools and tips help young people get through anything from everyday issues to tough times – and the information we offer parents makes it easier for them to help their teenagers, too.

Re-imagine Today is co-designed with people living with mental health issues. Many of those involved have lived experience of the NDIS and have used this experience to help you better understand how it all works

Intersex Peer Support Australia is a peer support, information and advocacy group for people born with variations in sex characteristics and their families.

Kids  Helpline is Australia’s only free, private and confidential 24/7 phone and online counselling service for young people aged 5 – 25

Intersex Head To Health is a digital Mental Health  resource by the Australian Government connecting you with some of Australia’s most trusted Mental Health organisations. It brings together apps, online programs, online forums, and phone services, as well as a range of digital information resources.

Parents of Gender Diverse Children provides peer support to Parents and those parenting Trans and Gender Diverse children. They realise that parents who are well supported are better able to support their children.

Intersex Human Rights Australia promote human rights, health and bodily autonomy. Their goals are to help create a society where intersex bodies are not stigmatised, and where our rights as people are recognised. They build community, evidence, capacity, and education and information resources.

Flourish Australia: Being part of the Flourish Australia family is a great way to make new friends, try new things and get more involved with your local community. Connect with us to start feeling less isolated.

Rape and Domestic Violence Services Australia  We provide nationwide counselling and support for people impacted by domestic and family violence.

 

Understanding XXY

How To Draw a Family Tree

A Review of Neurocognitive Functioning and Risk for Psychopathology in Sex Chromosome Trisomy XXY, XXX, XYY  

Recent Advances in Managing and Understanding Klinefelter’s Syndrome (47XXY)

Neural Systems for Social Cognition in Klinefelter Syndrome (47,XXY)

How Sex/Gender Influence Health & Disease

Human X Chromosome Inactivation and Reactivation

A History of Medical Genetics in Pediatrics

Genes Underlying Delayed Puberty

XXY: A Pediatric Quantitative Brain Magnetic Resonance Imaging Case-Control Study

High Normal Testosterone Levels Among Non-Mosaic XXY Infants 

 

 

Other Sex Chromosome Variations

 

46 XX(y) Phenotypically there are three groups of sex-reversed 46,XX individuals. The first classical group includes phenotypically normal XX males, while the second and third groups consist of those with varying forms of genital ambiguity.

48 XXYY  is a chromosomal variation that causes infertility, developmental and behavioural issues, as well as other health problems

48,XXXY  often compared with 47,XXY because of shared features including tall stature and hypogonadism, 48,XXYY, 48,XXXY and 49,XXXXY are associated with additional physical findings, congenital differences, medical problems and psychological features.

 

Educational Resources

Diversitywise Educational Services provides curriculum, pedagogy and professional development services to early learning centres and schools.

Speech & Language Development Australia is the nation’s peak body supporting and advocating for the needs of children and young people with speech, language and related differences.

A Podcast Initiative  by The National Consistent Collection of Data on School Students with Disability, to assist in learning more about development issues

Brain Facts dot Org
shares the stories of scientific discovery and the knowledge they reveal. Join them as they explore the universe between our ears. Because when we know our brains, we know ourselves.

Executive dysfunction and relation with behavioral problems .These findings suggest that executive dysfunction may be part of the phenotype of children with an extra X chromosome, impacting the ability to function adequately in everyday life.

Pharmacology

All you ever needed to know about Pharmacology but were too afraid to ask

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International Links

Interesting Facts About XXY: The primary purpose of this blog is to raise awareness of XXY and the difficulties the community faces in finding appropriate medical professionals who understand the multifaceted presentation of what it means to be an XXY individual.

The Organization for the Study of Sex Differences (OSSD) is a unique scientific organization that seeks to enhance knowledge of sex/gender differences by facilitating interdisciplinary communication and collaboration among scientists and clinicians of diverse backgrounds.

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We thank you for your patronage throughout 2020 and hope this year proves to be a better one for us all. A special thanks those of you who supported us with your generosity, it is because of you that we are still active today. Thank you.

Top Posts & Pages

  • Dyspraxia is more than just “clumsy child syndrome” – it can cause emotional distress and anxiety throughout life
  • Mental Health of a Large Group of Adults With Variations of Sex Development in Six European Countries.
  • ‘It will change everything’: DeepMind’s AI makes gigantic leap in solving protein structures
  • Non-invasive Breast Cancer Test On The Horizon
  • The Lived Experience of 47XXY (Klinefelter Syndrome): A Narrative Review of the Literature

Disclaimer

This site is for educational purposes only and is not meant to serve as medical advice. We would caution anyone against using the information, in place of seeking real time medical or mental health support. The information should not be considered complete or exhaustive. Do not use the information to diagnose or treat any medical condition. We strongly encourage you to take the information presented here and discuss it with your treatment providers. If you are not satisfied with their response, we would encourage you to seek out additional opinions until you find the answers that are right for you

Acknowledgement

We acknowledge the Traditional Owners of country throughout Australia and recognise their continuing connection to land, waters and culture. We pay our respects to their Elders past, present and emerging

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